December 2009

Merry Christmas everyone – and thank you for agreeing to participate in the EPICure2 Study.  We wanted to update you all on the progress of the study so far.

As you know, we are currently in the process of visiting as many of the EPICure2 children as possible across England. We have visited almost 400 families so far, but there are more than 1000 children in the study so we have a long way to go!

For those of you who have already had an assessment by one of our paediatricians... 

Thank you! We hope you found it a useful experience. Your help has been invaluable.

For those of you who are waiting for an assessment...

We’ll be in touch shortly.   If you haven’t replied to our invitation for assessment, please don’t hesitate to contact us using the details below – it isn’t too late and we would love to hear from you.  The assessment can be carried out either in your own home, or at your local hospital.

What about the results of the study?

We need to finish visiting as many EPICure2 children as possible first, and then we will begin the task of looking at all the results. As soon as we have the information, it will be on our website and you will all receive another newsletter in due course.

We would like to wish you all a Happy Christmas and our Best Wishes for the New Year. We look forward to meeting those of you we haven’t already visited, in 2010!