EPICure2@11 is the latest phase of EPICure2 – the study of health and development following birth at 26 weeks of gestation or less in 2006 across England. As in the original 1995 EPICure Study, we want to find out how the children born in 2006 are growing up now they are around 11 years of age. The Medical Research Council continues to fund this exciting project.
EPICure2 identified over 1000 children who went home from neonatal units in that year. It will be difficult for us to attempt to meet all the children so we will be contacting only those who were born in the London area and around the Midlands to invite them to take part in an assessment. However, we will keep every family informed of the progress and results of the study.
We are hoping to visit as many children as possible in their schools to minimize any disruption and travelling. This also gives us an opportunity to visit a classmate at the same time, which is important for us to be able to understand the results of our assessments, as well as finding out how the children are getting on at school.
The study will continue to be organised from UCL in London, but we have set up a second centre at the University of Leicester, led by Dr Samantha Johnson, from which to base visits for the children who live around the Midlands. At each site (London and Leicester) we have two researchers who will carry out the visit, a health professional and a psychologist. They will visit the school for one school day and carry out a range of assessments. The children taking part will go to registration as usual and have the same breaks as they would normally have so they can spend time with their friends. At the end of the study we will provide parents with a short summary report of their child’s assessment results. Sometimes parents find it helpful to share this with the school or their doctor.
We are very grateful to all the children and families that help us with our research. The information helps us understand how neonatal care affects the way children grow up and develop. Results from the previous phase of the EPICure2 Study have already been used to inform medical treatment for women and children facing extremely premature birth.
You can find out more about our researchers on the meet the team page below.
There are two groups of things we wish to study – both of which may be related to premature birth – you can find out more by clicking on the links below:
More details on how the study will unfold and the timelines for everyone involved in the study can be found on the following pages:
If you have any questions or would like to find out more please do not hesitate to get in touch, details of how to do this can be found on our contact us page.